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Ankylosing spondylitis

Johnny442

Johnny442

New Member
After going to the Ortho for serious hip, leg and foot pain, I was diagnosed with Ankylosing spondylitis. Dr said I have had this issue for a while. Just curious if anyone has any knowledge or experience with what seems to be a pretty serious condition.
 
As I hope you have already been told, or have learned, AS is one of many forms of ARTHRITIS, which in this case primary involves the SPNE, and PELVIS, and like many other autoimmune disorders the mode of transmission is GENETIC.

There are many, SIX at present, new drugs called "biologics" that can arrest the disease progression such as Humira (adlalimumab), Remicade (infliximab) and Simponi (Golimumab)

Here's a medical review article but their are many AKS blogs that are worth looking into thru Web MD
 

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Docd187123 said:
I've never heard of it before. What's happening to you with this?
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Right now I feel like I have a pinched nerve. Severe pain in left hip and leg. It started with just really tight hamstrings and glutes and what I thought was just a sore QL. I tried like hell to stretch and roll it out to no avail. Finally 2 weeks ago I got this sciatica feeling in my leg which led me to the trip to my Ortho.
Basically it's a type of incurable rheumatoid arthritis. Eventually my vertebrae and hips will fuse together. Looks like my powerlifting days are over, unfortunately.
 
Yea heavy lifting is probably your worst friend at this point and so is a SCAPEL, for all intents and purposes.
 
Dr JIM said:
Yea heavy lifting is probably your worst friend at this point and so is a SCAPEL, for all intents and purposes.
Click to expand...
Yep Dr Jim, I just started back in the gym this week and I'm having to change my philosophy in the gym. Light weight pump work from now on I guess and no deadlifting. Maybe now I can finally get that beach body! Lol
 
Last edited:
You may also want to consider changing your priorities in life there mate. There are many ways to acquire that "beach body" wo lifting weights, free weights in particular.

Bottom line if it hurts, or is associated with your pre-diagnosis signs and symptoms, don't do it.
 
Johnny442 said:
Right now I feel like I have a pinched nerve. Severe pain in left hip and leg. It started with just really tight hamstrings and glutes and what I thought was just a sore QL. I tried like hell to stretch and roll it out to no avail. Finally 2 weeks ago I got this sciatica feeling in my leg which led me to the trip to my Ortho.
Basically it's a type of incurable rheumatoid arthritis. Eventually my vertebrae and hips will fuse together. Looks like my powerlifting days are over, unfortunately.
Click to expand...

If you know who POB is I would check with him to see what your options are regarding this and lifting. He's very good at this kind of shit.
 
Johnny442 said:
Right now I feel like I have a pinched nerve. Severe pain in left hip and leg. It started with just really tight hamstrings and glutes and what I thought was just a sore QL. I tried like hell to stretch and roll it out to no avail. Finally 2 weeks ago I got this sciatica feeling in my leg which led me to the trip to my Ortho.
Basically it's a type of incurable rheumatoid arthritis. Eventually my vertebrae and hips will fuse together. Looks like my powerlifting days are over, unfortunately.
Click to expand...

Well I just saw your post at the other place so you do know POB lol. Him and DF might be able to offer you some good insight. I, unfortunately, know nothing about it. I'll see if I can dig up some shit though.
 
Dr JIM said:
You may also want to consider changing your priorities in life there mate. There are many ways to acquire that "beach body" wo lifting weights, free weights in particular.

Bottom line if it hurts, or is associated with your pre-diagnosis signs and symptoms, don't do it.
Click to expand...
I fully agree. Upper body work doesn't seem to bother me. Pre diagnosis, only deadlifting and squats seem to cause problems, and that was just tightness, or so I thought.ive been researching this like crazy since last week, and big changes are def in the works.
 
Johnny442 said:
Yea, I'm hoping the ginger chimes in with some advice over there!
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I'd stick w medical advice for now and a Physical Therapist is your best bet since dealing with varied forms of ARTHRITIES is one of their many fortes.

I'm not suggesting others are of no help but having a frim grip on the involved pathophysiology is critical to understanding what forms of "therapy" may be beneficial or detrimental.
 
How you holding up brother? What meds have they put you on if any? I was reading about the med I was just put on and it said it treats ankylosing spondylitis as well as other bad ass issues.

I'm on indomethacin @ 75mg daily w food
 
Ickyrica said:
How you holding up brother? What meds have they put you on if any? I was reading about the med I was just put on and it said it treats ankylosing spondylitis as well as other bad ass issues.

I'm on indomethacin @ 75mg daily w food
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I'm hanging in there brother, it's a very tough thing to deal with. Right now I'm on naproxen and tramadol. I have an appointment with rheumatologist in Dec. From my research, biologics like Humira seem to slow down the progression of fusing. Unfortunately, it's 25-40 grand a year. The pain is pretty bad sometimes but the exhaustion is the real motherfucker! Makes you feel like you have a 200lb weight on all the time! I appreciate you asking, I'm doing my best to train as much as possible.
 
@Johnny442, if you have medical insurance you should see if any of those drugs are covered. Keeping your back loose through daily stretching should help a bit too.

Good luck and hope things do work out for you brother.
 
Johnny442 said:
After going to the Ortho for serious hip, leg and foot pain, I was diagnosed with Ankylosing spondylitis. Dr said I have had this issue for a while. Just curious if anyone has any knowledge or experience with what seems to be a pretty serious condition.
Click to expand...
1 AS is mostly genetic

2 have Xrays done at least once a year to make sure no bone spurs may pierce discs

3 good sleeping position. Get custom pillow if needed

4 Avoid jobs that need you to turn/bend your neck

5 consider a car with a softer suspension. No lifted Wranglers

6 Low weight/high reps, mild if any squatting

7 add some deca to your cycles
 
master.on said:
1 AS is mostly genetic

2 have Xrays done at least once a year to make sure no bone spurs may pierce discs

3 good sleeping position. Get custom pillow if needed

4 Avoid jobs that need you to turn/bend your neck

5 consider a car with a softer suspension. No lifted Wranglers

6 Low weight/high reps, mild if any squatting

7 add some deca to your cycles
Click to expand...
I never thought I'd say this but, thanks @master.on
 
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