Got your attention? Im sure many of the docs will freak out, but hear me out.
This is just a warning to fellow "hard to figure out cases".
For a small percentage of people like myself, who are on the end of the bell curve, anomalies if you will, blood tests can be nearly worthless and so misleading that your doctor will actually keep you sick by over relying on blood tests.
I have finally cured myself after many years of suffering from extreme fatigue, brain fog, zero recovery time, aches and pains, etc. 80-90% disabled. Couldnt hold a regular job.
Why could no doctor heal me? BLOOD TESTS! If you are a weirdo like me, blood tests will completely mislead you and your doc.
So if you have been suffering for a long time, and trying to tune yourself up with your doc's help, and its just not working, as a *last ditch* effort, try this:
Repeat the tune up process, but this time mostly ignore your blood tests. You must tune yourself up via keeping a detailed log of SYMPTOMS. Take a very scientific approach. Change one variable each month, and track your symptoms every day. This is very hard to do because you will realize it could take over a years worth of monthly experiments to figure it out and you are so desperate to feel better.
I kept a spreadsheet for years, and it tracked the following on a scale of 1 to 10 for each variable:
Fatigue
Recovery time from exercise
Sleep quality
Blood pressure
Resting heart rate
Morning wake up temperature
Any side effects experienced
Morning wood
Ability to get wood
Ability to orgasm
I then overlaid my blood tests on my spreadsheet so I could correlate the response.
What did I discover??? Im really really weird.
Key points:
1) I require T levels of 1200-1500 to feel like a normal person with very normal energy and recovery abilities. My docs always wanted to lower my number and it would make me feel like death
2) I develop gyno with estradiol (labcorp sensitive test) levels above 13! Most people recommend E2 at 20-30. That would destroy me.
3) I experience all the typical E2 symptoms when I go above 7!!! Crazy, but ive proven this through careful testing many many times. I get fatigue, aches, cant orgasm, etc. I feel best at about 5-6.
4) TSH is nearly worthless for me. Again, going by symptoms alone allowed me to find my proper dose. Change this at most once a month, there is a BIG lag. Every 6 weeks is probably better.
5) Afternoon temp was not affected by thyroid medication, but wake up trough temperature was. This allowed me to track my thyroid dose much better. You can clearly see my temp troughs climb as I start thyroid medication.
Now im sure some docs reading this will say its bad advice, that I dont know what im talking about, and all I gotta say is I know far more about me then they ever will, and I have hard core, carefully detailed experiments that will prove every assertion I make with extremely strong correlations. You didnt cure me, and I did, the proof is in the pudding. When docs talk, they are talking about "normal" people who are not on the end of the bell curve as far as how people are *suppose* to respond to treatments. So disregard the nonsense, its exactly their advice that kept me sick for many years. They were trying to put a square peg in a round hole.
I have gone from, barely mustering enough energy to crawl out of bed, to being a top level competitor at work again,my former former self. At my worst, I could barely walk a quarter a mile without being completely wiped out.
So when you have gone through many docs, and have just about given up, I suggest my protocol. Take the approach docs took several decades ago when blood tests didnt even exist. They figured out all the doses based on physiological symptoms, and it worked, just was more difficult and tricky to figure out the patterns but it can be done with careful tracking, and one variable change at a time. Really hard to do, because really sick people are very impatient.
If any doc wants to try and debunk this, F you. You guys kept me sick for many years, you clearly dont know what you are talking about, and your degrees have proven worthless to me. Ive put more years of research into this than most of my docs have and thats has become obvious at this point. Im stunned at the stupid out of date crap docs tell me in the office these days. I bet less than 1% of docs really know there stuff when it comes to these hard cases, so be forewarned. Those 1% wont be trying to debunk my post, because I wager they take a similar approach. They know the typical lazy doc approach is worthless. AKA: take some basic blood tests, claim everything is in range, tell patient they are healthy but depressed, and whisk them out the door. Seriously, F docs like that. A good doc will work with you and look well beyond just the blood tests. A good doc knows that the physiological response carries 10X the weight a blood test does.
The biggest problem I see is, most people who are hard to figure out do not have a single doc in their area even capable of curing them. So you have to figure it out all on your own, unless you have the resources to travel many times to another state or country.
This is just a warning to fellow "hard to figure out cases".
For a small percentage of people like myself, who are on the end of the bell curve, anomalies if you will, blood tests can be nearly worthless and so misleading that your doctor will actually keep you sick by over relying on blood tests.
I have finally cured myself after many years of suffering from extreme fatigue, brain fog, zero recovery time, aches and pains, etc. 80-90% disabled. Couldnt hold a regular job.
Why could no doctor heal me? BLOOD TESTS! If you are a weirdo like me, blood tests will completely mislead you and your doc.
So if you have been suffering for a long time, and trying to tune yourself up with your doc's help, and its just not working, as a *last ditch* effort, try this:
Repeat the tune up process, but this time mostly ignore your blood tests. You must tune yourself up via keeping a detailed log of SYMPTOMS. Take a very scientific approach. Change one variable each month, and track your symptoms every day. This is very hard to do because you will realize it could take over a years worth of monthly experiments to figure it out and you are so desperate to feel better.
I kept a spreadsheet for years, and it tracked the following on a scale of 1 to 10 for each variable:
Fatigue
Recovery time from exercise
Sleep quality
Blood pressure
Resting heart rate
Morning wake up temperature
Any side effects experienced
Morning wood
Ability to get wood
Ability to orgasm
I then overlaid my blood tests on my spreadsheet so I could correlate the response.
What did I discover??? Im really really weird.
Key points:
1) I require T levels of 1200-1500 to feel like a normal person with very normal energy and recovery abilities. My docs always wanted to lower my number and it would make me feel like death
2) I develop gyno with estradiol (labcorp sensitive test) levels above 13! Most people recommend E2 at 20-30. That would destroy me.
3) I experience all the typical E2 symptoms when I go above 7!!! Crazy, but ive proven this through careful testing many many times. I get fatigue, aches, cant orgasm, etc. I feel best at about 5-6.
4) TSH is nearly worthless for me. Again, going by symptoms alone allowed me to find my proper dose. Change this at most once a month, there is a BIG lag. Every 6 weeks is probably better.
5) Afternoon temp was not affected by thyroid medication, but wake up trough temperature was. This allowed me to track my thyroid dose much better. You can clearly see my temp troughs climb as I start thyroid medication.
Now im sure some docs reading this will say its bad advice, that I dont know what im talking about, and all I gotta say is I know far more about me then they ever will, and I have hard core, carefully detailed experiments that will prove every assertion I make with extremely strong correlations. You didnt cure me, and I did, the proof is in the pudding. When docs talk, they are talking about "normal" people who are not on the end of the bell curve as far as how people are *suppose* to respond to treatments. So disregard the nonsense, its exactly their advice that kept me sick for many years. They were trying to put a square peg in a round hole.
I have gone from, barely mustering enough energy to crawl out of bed, to being a top level competitor at work again,my former former self. At my worst, I could barely walk a quarter a mile without being completely wiped out.
So when you have gone through many docs, and have just about given up, I suggest my protocol. Take the approach docs took several decades ago when blood tests didnt even exist. They figured out all the doses based on physiological symptoms, and it worked, just was more difficult and tricky to figure out the patterns but it can be done with careful tracking, and one variable change at a time. Really hard to do, because really sick people are very impatient.
If any doc wants to try and debunk this, F you. You guys kept me sick for many years, you clearly dont know what you are talking about, and your degrees have proven worthless to me. Ive put more years of research into this than most of my docs have and thats has become obvious at this point. Im stunned at the stupid out of date crap docs tell me in the office these days. I bet less than 1% of docs really know there stuff when it comes to these hard cases, so be forewarned. Those 1% wont be trying to debunk my post, because I wager they take a similar approach. They know the typical lazy doc approach is worthless. AKA: take some basic blood tests, claim everything is in range, tell patient they are healthy but depressed, and whisk them out the door. Seriously, F docs like that. A good doc will work with you and look well beyond just the blood tests. A good doc knows that the physiological response carries 10X the weight a blood test does.
The biggest problem I see is, most people who are hard to figure out do not have a single doc in their area even capable of curing them. So you have to figure it out all on your own, unless you have the resources to travel many times to another state or country.
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