My story- Doctors Don't Know What is Wrong

Just try the gluten and dairy free diet bro. Too much analysis paralysis going on here. If you want, I can send you a killer recipe for some gluten free vegan cupcakes. ;)

I apologize :D. I tend to do that, especially when it comes to talking about my health nowadays. This has been happening for so long and I don't want to waste anymore time. Conformation would be great. I just want to figure this out. Very anxious.
 
As of this January about a third of U.S. adults say they want to cut down or be free of gluten in their diets, the highest percentage making this claim since The NPD Group, a leading global information company, began asking the question in 2009. NPD’s Dieting Monitor, which continually tracks on a bi-weekly basis top-of-mind dieting and nutrition-related issues facing consumers, reports that 30 percent of adults, one in every three adults, claimed to cut down on or avoid gluten completely in January 2013.
https://www.npd.com/wps/portal/npd/...r-diets-reaches-new-high-in-2013-reports-npd/
 
Im gluten, dairy, soy, and high fructose corn syrup free. Getting 3 rd generation of alcat food testing done in a few days to finish off the list. Severe cases of eczema cleared up when people.food.sensitivities where identified and removed. After 6 months they could go back to eating them no.reactions.
 
Im gluten, dairy, soy, and high fructose corn syrup free. Getting 3 rd generation of alcat food testing done in a few days to finish off the list. Severe cases of eczema cleared up when people.food.sensitivities where identified and removed. After 6 months they could go back to eating them no.reactions.

Ah I see, you have food issues as well. And that ^^^ is very interesting.
 
I am going to get tested for Human Growth Hormone and IGF-1. What is the best time of day to test for these? Or how long after I wake?
 
I visited the doctor today at John's Hopkins. She seemed to be a very knowledgable doctor and I am comfortable with what she said. For those whom don't know, she is one of the best doctors at John's Hopkins, which says a lot.

She thinks that my results do not indicate a problem hormonally, since they are borderline, and that she would see problems in other areas if it was, as well. She believes the anxiety and my poor sleep quality are responsible for my problems. She also does not believe I have adrenal issues, and that Salivary Cortisol Tests are a bad judge.

Right now she wants me to stop the Androgel and Synthroid, and get my anxiety under-check. I am going to start an anti-anxiety medicine, and get tested again in 4 months for the other hormones. I will most likely undergo a sleep study too.

Any thoughts?
 
Poor sleep quality and lack of REM sleep is the theory behind apnea induces hypogonadism.....no REM equals lower LH production. Your LH test results have always been fine yet your tT and fT are low.

I don't know....kinda sounds like she's looking for Zebras in New Jersey. If it looks like a duck and quacks like a duck.....it's probably a zebra?
 
Poor sleep quality and lack of REM sleep is the theory behind apnea induces hypogonadism.....no REM equals lower LH production. Your LH test results have always been fine yet your tT and fT are low.

I don't know....kinda sounds like she's looking for Zebras in New Jersey. If it looks like a duck and quacks like a duck.....it's probably a zebra?

Thank you for reading my thread, idmd.

I'm wondering the same. It seems very...convenient. What do you think about the anxiety? I do have constant, heavy anxiety and don't cope with stress well. I don't know. (1) The Synthroid and Androgel didn't do much to improve my quality of life. I had expected more...much more. Which does make me wonder if something else is causing my poor quality of life, such as anxiety. (2) I know that elevated cortisol levels, like those found in patient with high anxiety, can cause hypogonadism or low testosterone.

My anxiety has been bad for most of my life. I'm not sure if that is what is causing my problems. Along with Anxiety Disorder, I was diagnosed with Obsessive-Compulsive Disorder. Not in the classic definition of the disorder, but more of my mental tendencies. When I become locked on an idea or thought, it is very difficult for me to move past it. It can come close to consuming my world. That accompanied with the negative thoughts processes of anxiety depression, even if depression was more in the past, could perhaps cause a serious problem. Maybe my sleep doesn't cause hormonal issues, but perhaps exacerbates the problem. I don't know if this is the case, all I am saying though is, I wouldn't be surprised.

I just don't want to make the wrong choice here. I have come so far in what I thought was the right path, i.e. pursuing hormonal replacement therapy. I would hate to backtrack through the requesting of doctor's permission and months of progress only to come to find I am back at the beginning.

Thank you again for your input. I want to add, I am not trying to argue with you. I have had forum members in the past tell me I am arguing with them when I am simply trying to engage in a discussion. I'm just trying to approach this from every angle I can comprehend. Just want to make sure that's clear :D.
 
Last edited:
I was diagnosed with anxiety and depression at 18 and i've been on/off meds since then and now at 34 on TRT I have ZERO issues with anxiety or depression. My case is clear cut and yours is not.

IMO even if TRT doesn't solve all your problems I think it's still worth considering in addition to other possibilities. It may not solve all your problems but your likelihood of obtaining overall health is low with low T. Who says it has to be one thing?
 
I was diagnosed with anxiety and depression at 18 and i've been on/off meds since then and now at 34 on TRT I have ZERO issues with anxiety or depression. My case is clear cut and yours is not.

IMO even if TRT doesn't solve all your problems I think it's still worth considering in addition to other possibilities. It may not solve all your problems but your likelihood of obtaining overall health is low with low T. Who says it has to be one thing?

You sound like a simpler case of me! I was diagnosed with anxiety and depression at the age of 13. I am 21 now. On a side note, I am glad that Testosterone Replacement Therapy has worked so well for you.

I see your point. Ironically, my anxiety has been going through the roof about this recently about this all! I feel like the chance that it is just one thing could be higher since I am very young, so I still look for that one, elusive cause, but I know this might not be the case. It's just at the age of 21, I don't want to use exogenous testosterone and impair my fertility if I dont have to. Let me point out, if it was determined that I needed it, I would use it without ever looking back and take my risks. I just want to be more sure in my decision.
 
I didn't have these tested while without TRT so I don't know how these were before, but on three weeks of Androgel, these are my results! Very strange! Any thoughts???

Test Results

Growth Hormone, Serum <0.1 0.0-2.9
Insulin-Like Growth Factor I 438 83-344 ng/ML
Estradiol, Sensitive <3 3-70
 
What did your doc say about those clearly bizarre results. Do you get aching joints and such.

Be interesting to hear what the Scally has to say in this regard!

On a positive note at least you have obvious areas that clearly need addressing.
 
What did your doc say about those clearly bizarre results. Do you get aching joints and such.

Be interesting to hear what the Scally has to say in this regard!

On a positive note at least you have obvious areas that clearly need addressing.

They weren't available when my I visited my doctor. Yes I do have occasional achy joins. It is not severe though. Mostly in my knees when it happens.

Yes. At least this is more "telling" that there is a problem... just what could it mean...

Does anyone have knowledge if this could somehow be further related to gluten intolerance possibility?
 
Does anyone have knowledge if this could somehow be further related to gluten intolerance possibility?

Yes, it's a possibility.

Also, FYI:

http://chriskresser.com/9-steps-to-perfect-health-1-dont-eat-toxins
 
My endo did a gluten inflammation test. It was fine.

Ask your doctor for this test to see if gluten is your problem or not.
 
Yes, it's a possibility.

Also, FYI:

http://chriskresser.com/9-steps-to-perfect-health-1-dont-eat-toxins

Gluten Sensitivity/ Celiac's could go this far in messing up my hormones? My Estradiol is practically non-existent! That's unbelievable to believe.

My endo did a gluten inflammation test. It was fine.

Ask your doctor for this test to see if gluten is your problem or not.

Is that a good way to test? I had a Celiac's Disease Panel done. It came back clear, and my doctor at John's Hopkins told me I couldn't have Gluten issues, but from what I understand, gluten sensitivity can be somewhat elusive and also very harmful.
 
Gluten Sensitivity/ Celiac's could go this far in messing up my hormones? My Estradiol is practically non-existent! That's unbelievable to believe.

Stop eating ALL grains for one month and monitor how you feel. There's more to them than just the gluten that can cause you problems, as per the article I cited.

Wheat, for example, hasnt been a natural food for 40+ years.

[ame=http://www.youtube.com/watch?v=tGsrny2NQ5U]Modern Wheat a Perfect Chronic Poison says Dr. William Davis - CBS News - YouTube[/ame]


And, the bromine used in baked products can interfere with proper thyroid function.
Potassium Bromate
 
I'll give it my best shot, but it'll be hard to stay gluten-free at the fraternity house. Thanks for the advice on the gluten-free diet guys.
 
Back
Top