The MRI doesn’t show anything wrong, but if you physically look at my knee you can see a dent in my kneecap. I can’t really explain why that is, but my guess is because the tendon has shrunk in size and has caused a concave look to my knee.
I’ve been to nearly every type of doctor that is for a condition like mine and nobody knows what to do with me. Kaiser gave up and sent me to a pain management class, which was a joke. Basically, a six week class that teaches you about nutrition, stretching, light weight training, the importance of sleep, and meditation.
I know I will deal with these problems my whole life… I can’t open up a jar, I have a hard time lifting my arms, but what I can’t deal with this being in a wheelchair. I’m sure everyone understands being in a wheelchair sucks, but you really have no idea how bad it is until you’re actually in one. It’s 100 times worse than whatever you think it is.
Being that I have a hard to figure out case, I tried to get into UCSF and they rejected me as I don’t have a diagnosis. I tried other University hospitals and got the same response. Without a direct diagnosis they will not see me. Unfortunately, your standard rheumatoid clinic doesn’t have what it takes to figure out what I have. So it’s a catch 22, I can’t get into the good places that may be actually able to help me because the entry-level practices can’t diagnose me.
I also have another appointment for an entry-level rheumatoid clinic in September, which I scheduled a month ago. So for them to see a new patient I have to wait three months. And I know once I'm in nothing will become of it, because that’s what always happens.
If I can just get to the point where my knee has enough strength to do the physical therapy I know I can walk again, I just want to get there…
I’ve been to nearly every type of doctor that is for a condition like mine and nobody knows what to do with me. Kaiser gave up and sent me to a pain management class, which was a joke. Basically, a six week class that teaches you about nutrition, stretching, light weight training, the importance of sleep, and meditation.
I know I will deal with these problems my whole life… I can’t open up a jar, I have a hard time lifting my arms, but what I can’t deal with this being in a wheelchair. I’m sure everyone understands being in a wheelchair sucks, but you really have no idea how bad it is until you’re actually in one. It’s 100 times worse than whatever you think it is.
Being that I have a hard to figure out case, I tried to get into UCSF and they rejected me as I don’t have a diagnosis. I tried other University hospitals and got the same response. Without a direct diagnosis they will not see me. Unfortunately, your standard rheumatoid clinic doesn’t have what it takes to figure out what I have. So it’s a catch 22, I can’t get into the good places that may be actually able to help me because the entry-level practices can’t diagnose me.
I also have another appointment for an entry-level rheumatoid clinic in September, which I scheduled a month ago. So for them to see a new patient I have to wait three months. And I know once I'm in nothing will become of it, because that’s what always happens.
If I can just get to the point where my knee has enough strength to do the physical therapy I know I can walk again, I just want to get there…